Suggested Reading
Below is suggested reading in preparation for the upcoming lectures:
Background
Blueprint for an AI Bill of Rights: Making Automated Systems Work for the American People. Office of Science and Technology Policy, The White House. October 2022. Pg 1-11.
Grace Wickerson Lecture
Wickerson G. Combating Bias in Medical Innovation. Day One Project Early Career Science Policy Accelerator, a joint initiative between the Federation of American Scientists and the National Science Policy Network. April 26, 2022.
Lu K, O'Brien C, Wickerson G. Community-Driven Civic Science: Relationship Building to Prioritize Public Needs. Journal of Science Policy & Governance. 2024;23:2.
Wickerson G. The Culture of Engineering Overlooks the People It's Supposed to Serve. Scientific American. February 24, 2022.
Bondi-Kelly E, Hartvigsen T, Sanneman LM, Sankaranarayanan S, Harned Z, Wickerson G, Wawira Gichoya J, Oakden-Rayner L, Celi LA, Lungren MP, Shah JA, Ghassemi M. Taking Off with AI: Lessons from Aviation for Healthcare. EAAMO '23: Proceedings of the 3rd ACM Conference on Equity and Access in Algorithms, Mechanisms, and Optimization. October 2023.
The Light Collective Panel Discussion
Trang B. Why U.S. Health Care Cybersecurity Laws are Better at Protecting a Corpse’s Privacy than Patients’ Lives. STAT. August 13, 2024.
Prior R. This Breast Cancer Advocate Says She Discovered a Facebook Flaw that Put the Health Data of Millions at Risk. CNN. March 6, 2020.
Ostherr K and Trotter F. Facebook’s FTC Settlement Doesn’t Protect Privacy of Users’ Health Information. STAT. July 31, 2019.
Riggare S. Patients' Experiential Knowledge & Expertise. August 8, 2024.
Perakslis ED, Ranney ML, Goldsack JC. Characterizing Cyber Harms from Digital Health. Nature Medicine 2023;29, 528-531.
VIDEOS: The Patient AI Rights Initiative. The Light Collective.
Jeremy Greene Lecture
Greene J. Hypodermics on the Shore. The Atlantic. August 29, 2023.
Moran-Thomas A. How a Popular Medical Device Encodes Racial Bias. Boston Review. August 5, 2020.
Craig Watkins Lecture
Brewer LC, Jenkins S, Hayes SN, Kumbamu A, Jones C, Burke LE, Cooper LA, Patten CA. Community-Based, Cluster-Randomized Pilot Trial of a Cardiovascular Mobile Health Intervention: Preliminary Findings of the FAITH! Trial. Am Heart J. 2022 May;247:1-14. doi: 10.1016/j.ahj.2022.01.009. Epub 2022 Jan 20. PMID: 35065922. PMCID: PMC9287100.
Stade EC, Stirman SW, Ungar LH, Boland CL, Schwartz HA, Yaden DB, Sedoc J, DeRubeis RJ, Willer R, Eichstaedt JC. Large language models could change the future of behavioral healthcare: a proposal for responsible development and evaluation. Npj Ment Health Res. 2024 Apr 2;3(1):12. doi: 10.1038/s44184-024-00056-z. PMID: 38609507. PMCID: PMC10987499
Susannah Fox Lecture
Fox, Susannah. Preface and “Seeker, Networker, Solver, Champion.” In: Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care. The MIT Press, 2024, pp. ix-15.
Lewis, Dana. “Personalizing Research: Involving, Inviting, and Engaging Patient Researchers.” In: Hsueh, PY.S., Wetter, T., Zhu, X. (eds) Personal Health Informatics. Cognitive Informatics in Biomedicine and Healthcare. Springer, Cham., 2022. doi.org/10.1007/978-3-031-07696-1_17
Patient-Led Research Scorecards. Council of Medical Specialty Societies (CMSS) and Patient-Led Research Collaborative (PLRC). The Promise of Patient-Led Research Integration into Clinical Registries and Research project funded by a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award.
Image: Computer specialist John Smith arranges and examines cannisters of magnetic tape used in the processing of medical data at the National Library of Medicine (c. 1960). Source: https://collections.nlm.nih.gov/catalog/nlm:nlmuid-101648151-img